I have no issue with the testing either. Had one baby who was diagnosed with CAH 5 years back. I find it to be a valuable source of information without putting anything into the baby.
It's just, in my state, FOD, fatty acid oxidation disorders, have been responsible for the death of a few babies, who were diagnosed at autopsy. It was originally thought they were SIDS (sudden infant death syndrome) cases or SUDI (sudden unexplained death of infants) cases. Because false negatives occur for FOD when a babe is well fed it is now recommended that screening be done after 24 hours but before 48. I have always waited a few days, till the milk was in, to do the screening, but now I am in the process of changing my practices for NBS.
There is a voice inside of you
That whispers all day long,
"I feel this is right for me,
I know that this is wrong."
No teacher, preacher, parent, friend
Or wise man can decide
What's right for you--just listen to
The voice that speaks inside."
— Shel Silverstein