Hi, I am new to this site. If I have posted in the incorrect forum, please let me know.
I am expecting my first child in October. I had planned a home birth for many reasons, and am a little terrified of hospital births. I have assisted about ten hospital births and know that I don't want the same experience.
Recently, it's been discovered that my baby has only one working kidney. The other kidney is "Multicystic Dysplastic" (MCDK), which means it formed poorly and is just a cluster of cysts. The other kidney appears to be working fine (good amniotic fluid, bladder, heart etc) and everything else appears to be healthy and "normal" about our child. They plan to continue to observe the kidney during my pregnancy, but say that nothing can be done and our baby should be able to live a normal, healthy life with only one kidney. They will need to check both kidneys after birth and frequently during childood to make sure everything is ok.
I would like to proceed with a home birth as planned (as I said I'm scared of going to the hospital), but don't want to do anything to endanger my child. I cannot ask the doctors too many questions about this because they were against me having a home birth from day one-they don't support home birth in general. My midwife is unfamiliar with the condition, but is also looking for more information to help me/us make an informed decision.
Has anyone had experience with MCDK and home birth or something similar? I appreciate any help or advice you can offer.
Thanks so much,